People living with SMA, ALS and other rare disease was the focus of the Rare Disease event at the EU Parliament on 18 February. The event was organised by Biogen in collaboration with EURORDIS, the patient organisation for rare diseases, hosted by the Members of the European Parliament Tomislav Sokol, Stelios Kympouropoulos and Loucas Fourlas and Stella Kyriakides, EU Health and Food Safety Commissioner, spoke at the event.